Lately I cannot stop singing the song For Good from the musical Wicked. I’m either singing parts of it out loud or it plays over and over in my head. Love that song! “I’ve heard it said That people come into our lives for a reason Bringing something we must learn And we are led To those who help us most to grow If we let them And we help them in return Well, I don’t know if I believe that’s true But I know I’m who I am today Because I knew you…” This is exactly how I feel. This journey has brought so many different people in our…

We aren’t sure if our son will ever walk unassisted. We don’t know when and if he will say his first words. There is a harsh reality that comes with having a child who is affected by this rare disorder. I’ve learned not to have any expectations. I live in the moment. I have to. I live in joyous moments and not defeating thoughts. I can’t live in the depressing reality that my son may never have the ability to care for himself, drive a car, or get married and have children. I celebrate every small achievement. I smile when I hear my son say a different consonant when he’s…