I don’t usually write about death. And I don’t particularly like to talk about it. I know it’s a reality of ours. Really, it’s a reality of all of ours but even more so when your child has a life threatening condition. I’m going to let you in on a little secret. It’s terrifying. It’s terrifying knowing that your child could get a common illness and then all of a sudden that common illness snowballs into something much more and then they’re gone. I can’t even think about it. But the other day I realized that I think about it far more than I even realize. I was scrolling through…

I expected joy. I expected so much happiness. I didn’t expect the tears. On the way home from the airport after my weekend in San Diego I started to tear up. I was telling my husband all about the medical conference I was at that was focused on congenital disorders of glycosylation, the genetic condition our middle son has. I told him there was so much buzz and excitement regarding research. The medical community and parents are determined to find a treatment and cure. There’s hope. But when I talked about the kids I started to cry. It was hard. It was hard for me to see the children walking…