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Perspective
Perspective: “the ability of someone to take into consideration and potentially understand the interpretations, outlooks, or actions of their self and of other people.” (psychologydictionary.org) One of the greatest lessons I have learned since Christopher was born is perspective. I sincerely try to write and share pieces of our life simply for a bit of insight. I want people to know what our life is like raising a child with significant needs. My ultimate hope is to share struggles and triumphs in a graceful way. I never want to come across as complaining or that I’m sharing for sympathy. Believe me, your sympathy is the last thing I want. My…
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Hope
There’s something that has been nagging at me. Something that has been bothering me. CDG has a huge spectrum. It is incredibly vast. Some individuals are tube fed, some are not. Some have seizures, some do not. Some can walk, some cannot. Some can speak, some can’t. Some are in the hospital for minor illnesses, some are not. It is crazy how the same diagnosis is really just never the same. I am overjoyed for families when they share accomplishments of their children. I am genuinely happy for a family when their child takes unassisted steps. Or writes their name. Or says “mama” for the first time. And yes, there’s…