What we didn’t know

There were many things we knew when we embarked on this unknown  journey. We knew it would be extremely hard. We knew we would need a tremendous amount of support. We were told seizures are likely. We were told by his specialists that keeping him healthy is very important; small illnesses could send him to the hospital and end up being “big.” We were told that, yes, his cerebellum would likely deteriorate until there was basically nothing left. All overwhelming and very scary.

What we didn’t know is far more important.

Last night as I was rocking him after a bloody nose I looked in his eyes and thought about what we didn’t know. We didn’t know that our family would become stronger. We didn’t know that our little boy would help us see life with a different perspective. I didn’t know that my faith would grow and I would spend quite a bit of time thanking God instead of making requests. We didn’t know that people would surprise us in amazing ways. Diapers delivered to our door. Warm meals handed to us right at dinner time. Drinks and laughs with great friends. A benefit that was far more than we could have imagined. The generosity of everyone was simply amazing. Oh….and his smile. We never could have known that his smile would touch the hearts of hundreds of others. We had no idea the amount of magic that he could hold in his sweet, charming grin.

We knew that navigating this rocky road wouldn’t be easy, but what we didn’t know is that so many people would gladly walk next to us. They would be there to catch us when we stumbled. They would lift us up when we fell. You. You would willingly be part of TEAM CHRISTOPHER. This is far more important than what we did know.

Oh…and let’s not forget that we had NO idea that he would have the best hair in the history of hair.